CELINE Dion has offered a glimpse into the intense symptoms of living with Stiff Person Syndrome in her new documentary.
The singer was diagnosed with the disease in 2022 and spoke about her condition in her latest project, I Am: Celine Dion, released this Tuesday.
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At the beginning of the documentary, Celine, 56 years old, appears lying in the fetal position on the floor, moaning in pain.
Paramedics were there to help the My Heart Will Go On singer, and one of them asked her to communicate by squeezing her hand.
Celine did not respond and the medical team picked her up, strapped her onto a stretcher and took her out of the room.
The superstar had a similar occurrence later in the documentary when she felt tremors throughout her body, making her unable to move.
Doctors were again at the mother of three’s side as she continued to moan and cry from the intensity of the tremors.
Her symptoms finally subsided after she was given Valium to calm her and a nasal spray.
LOSING CONTROL
“Every time something like this happens, you feel so embarrassed, and then… it’s just that you don’t like not having control of yourself,” Celine told cameras about the terrifying incident.
One of the doctors explained that the sudden attack occurred because his “brain was overstimulated” after singing in the studio.
Celine shared her frustration with the event and asked, “So what will happen?
“If I can’t be stimulated by what I love and then I’m going to go on stage and you’re going to put the pulse accelerator on me and turn me around?”
“It’s scary, I know,” replied the doctor. “This is not the end of your journey. But there’s always that step in the journey.”
Celine shared more about her heartbreaking diagnosis in the Amazon Prime documentary, including that she began experiencing symptoms 17 years earlier.
She revealed that it all started with her voice changing to the point where she couldn’t control it, which made her worried about performing on stage.
The Taking Chances singer has not performed since 2020 as her symptoms progressed.
What is stiff person syndrome?
Celine Dion stepped out of the spotlight after being diagnosed with a rare autoimmune disease
Stiff Person Syndrome is a rare neurological disorder that progresses over time.
The condition causes pain and muscle spasms that worsen over the years.
According to Contact A Family, the condition is characterized by “progressive stiffness and painful spasms in the back and limbs, which are often triggered by touch, noise, or anxiety, and exacerbated by movement.”
There is currently no cure, but death from the disease is rare.
Severe chest spasms can sometimes cause difficulty breathing.
Celine was diagnosed with the rare autoimmune and neurological syndrome six years after her husband, René Angélil, died of throat cancer.
The incurable condition causes muscle stiffness and painful spasms, but medications and physical treatment can make the disorder easier to control.
NOTHING IS IN YOUR WAY
Despite her health problem, Celine promised to be by her children’s side as their only living mother.
“She swore she would never allow her children to not have a father around, especially after the loss of René hit them so hard,” a friend of the hitmaker exclusively told The US Sun.
“Celine lives for her children and invests a lot in them,” the source continued.
“Her priority has always been being a mother, and although her career and singing come second, her main focus is supporting them as they grow.”
Celine has three children with her late husband: René-Charles, 23; and twins Nelson and Eddy, 13.
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